We’re Almost There. For Real!

Yay MSSoftServe! Yay you! 

Ok, we’ve been at this for a long time. MSSoftServe started as a vision, became a more substantial concept, and is now it is so close to becoming a reality. I’m sure you are all exhausted. I am too. This has been a very long road! But we are SO CLOSE! In fact, we’re only $90,000 away from actually building this thing!

So I ask you to stay the course, stick with me, and let’s cross the finish line together. (Hmm. This is starting to sound like a presidential campaign!)

Thanks to the foundations, corporate sponsors, and many of you who have donated to MSSoftServe, we’ve created the launching pad, or a diving board, or gateway that is alive and well at mssoftserve.org. Whatever your preferred “jumping off” metaphor is, this site is how we describe the online resource that will help us to: raise the funds, to produce the site, to create the tool, to empower people, to cope with the disease! 😉

(If for some reason you haven’t heard about MSSoftServe check out the video… I’ll wait for you. 🙂 )

The current site was designed by Clocktower Media of Seattle at a very discounted rate (thank you very much!) and will be the ticket to get MSSoftServe funded and produced (also at a discounted rate with Clocktower Media.)

How? I’m glad you asked.

This site, in its current form, is a one-stop-shop for everything you want to know about MSSoftServe and its production. It’s got videos, its got testimonials it’s got all the information that enquiring minds want to know. So whether you’re a person affected by MS, someone who represents a small foundation, a large foundation, a corporation- which ever category best represents you; this is the place to go to learn more about MSSoftServe and how you can make a difference for over 2.5* million peeps who are trying to deal with this very confusing disease. Now, how many opportunities in life afford that kind of impact?

And if you do fit into any of the aforementioned categories, chances are that you know that everyone who is living with Multiple Sclerosis has his or her own unique version. So here’s my question: Why should we all be expected to learn about the disease in the same way? I mean, how is that cookie cutter approach supposed to work?

(Spoiler alert)

It doesn’t!

One reason is that most people affected by MS, don’t want to know about every possible symptom, every scenario, every unpredictable outcome that may (or may not) affect her or him. And the people who care about them, who are also trying to understand how this confusing disease will affect their friends and family, will likely get freaked-out from the vast amount of info online. And with everyone on edge it’s hard to find support, everything gets worse from there and the downward spiral begins. PWMS need a support network. They need the people in their lives to understand what they are going through. If their friends and family don’t understand what they are dealing with, they can’t possibly help them manage the disease.

 

And let me say, MSSoftServe will be all that and more. It will only take $90,000 to produce the final www.mssoftserve.org site. (The complete operating budget is on the site. Total transparency. For real!)  A pretty small price tag for something that makes the lives people dealing with MS a bit easier, dontcha think?

So go! Go to the site that explains how we will do all of this. And spread the word, donate the funds (any amount) and tell any organization that is considering a grant to this nonprofit, that they will be beloved by the masses.

 Got questions? Email me, friend me, IM me.  (amy@mssoftserve.org) Because I love talking the talk and speaking with people who want this personalized site so that we can all cope more easily with MS. 

 Your support and encouragement has helped me (and our board of directors) to keep our eyes on the prize of helping all of us who are living with MS.  You’ve also helped to keep my energy and focus on this lifea mission. And like many of us who are living with MS, energy and focus aren’t always easy to come by.

So go grab your beverage of choice, sit back and watch some videos. And then tell everyone who you think will care about our effort and be interested in supporting it.

Then sit back and wait for those warm fuzzies, laced with enthusiastic motivation, to set in. 

Thanks~

 

*This number has been reported for decades and with 200+ diagnosed in this country a week, me thinks it’s a huge underestimate. Just saying 

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