Long Time No Talk; But Lots to Report!

Okay. I’m gonna do it. It may not be New Year’s Eve, nor is it my birthday. It’s just a normal July Sunday; but I’m going to cast my resolution out to the blog-o-sphere.

Yup. I’m going to jump in to the pool of “blog spontaneity” and start doing regular updates about the progress of MS SoftServe. So, all of you who have donated time and money to this effort- will find the proof in the pudding of good use. How about weekly updates. That would be good. Not so spontaneous, but reliable none-the-less!

So here we go.

MS SoftServe is really moving along. (Don’t know what MS SoftServe is? Click here and here to update your neuronic-file!)

Right now, we (and when I say we, I mean me and the Board of Directors) are planning our very first fundraising event at The Cherry Lane theater in NYC’s Greenwich Village. (Get out your digital planner and be ready to type!) It’s on October 22nd at 7pm. And as you scratch your head, wondering why this would be happening on a Monday night, I’ll ‘splain. Monday is the night that theaters are dark. So with that… we are planning to make Monday the new Saturday. At least this particular Monday in October. All the the others will still be regular old Mondays!

The Cherry Lane Theater is a non-profit that has generously donated it’s space for this event. (Thank you Cherry Lane!) And her is the skinny on what we are using it for.

MS SoftServe Presents: The Fingerprint Variety Show

That’s our name in progress. Please feel free to vote on it using the poll below.

As we all know, each of us living-with-it have our own unique MS fingerprint. And with that, our own creative story to tell. So, this event will not only provide the stage/video to convey your story; it also will launch the new site that will take place of our staging ground. If you’ve been to mssoftserve.org  you know that the web space saved for MS SoftServe is a little out of date. Back in 2007- I knew what I wanted to do, but did not yet have the means to do it. So this “staging ground” served as a space saver and a way to  get the word out. And it has worked very nicely if I do say so myself. (Thanks to Bonita Rutigliano for the site design and Kate Milliken of Milligrace productions for  the video on youtube.)

But now it’s time for something up-to-date. So on October 22nd we will be celebrating the launch of the new space saver that will also be an interactive functional site that will allow for detailed information (including but not limited to: the board of directors, the mission statement, the strategic plan, the grant application narrative and a place for you (yes you!) to make your mark by letting us know what you are looking for in your learning site.)  In short, this “launching pad” will be an up to minute functional site that provides Everything you’ve wanted to know about MS SoftServe*, * but didn’t know who to ask!

The event will include a stage performance for which we are looking for people with talent (musicians, actors, artists, comedians… et. al.) who either have MS or care about someone who does. (If you fit that bill and will be in the tri-state-area in October- do tell!)

In addition to the performance, the evening will include food, a fabulous raffle, a video of those of us who want to tell our story without standing on stage, food, wine, beer, and food. (have I mentioned food?)

MS SoftServe (remind me of what that is?)
A space where each one of us can learn about our unique version of MS without unwanted, irrelevant information and the anxiety that comes with learning more than you want. We will also be able to choose how we like to learn. Are you a visual learner who likes movies? You got it! Want an animation? It’s yours! Does a podcast fit your world? Click away! Learn about what you want, how you want. And here is my favorite part: You, as  a registered user, will have the opportunity to create a personal URL that describes your individual version of MS.  When you have this lifelong variable disease you have to explain it to everyone. With your own personal URL you can explain/educate/inform everyone in your social/familial/professional network about your unique MS without freaking them out with possibilities that may never be an issue for you. I don’t know about you, but the more people around me that aren’t freaked out by me, the better.

So if you have any ideas for our performance, or want to get up on stage and show us how it’s done. Let us know.  If you have the means with which to sponsor, underwrite or donate to this event, then bring it! As you probably know by now, MS S0ftServe is a 501c3 non-profit. What that means is that all donations are tax-deductible. What it also means is that your support will be helping so many of us living with MS- empowering us for our life of learning. Consider it a Karma explosion. (in a good way!)

The take-away:

  • MS SoftServe is coming.
  • This fundraising event will bring us closer to it as we launch our new launching pad. (I know… redundant- but you get the gist!)
  • We are looking for performers
  • We are looking for a stage director
  • We are looking for a famous person who cares about PWMS and will make our evening even more exciting than a food related thang.
  • Got stuff? (Want to donate items to be raffled?)
  • Donors Donors Donors (Donate Donate Donate) Want to sponsor the event and get your company’s logo on the shirt, banner, program, etc. Let me know
  • Make your mark (Spread that fingerprint all over the digital map as you represent just how diverse this disease can be.)

Talk to you next Sunday-  with more riveting information that will be more succinct! (promise!)

~Amy G.



Filed under Check us out!, Progress Report

2 responses to “Long Time No Talk; But Lots to Report!

  1. Exciting stuff, Amy 🙂 Wish I could attend this event. Good luck, I know it’ll all come together and be amazing! Looking forward to future updates as well.

    • Thanks for your supportive words! I wish you could be here. Too bad we don’t have a NYC meeting in October! 😉 It would be great to have you there…

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