By popular demand (and that it finally occurred to me!) MS SoftServe has a brand new blog. You’ve heard about the site-to-be; the place where you will be able to learn about your unique version of MS. (If haven’t heard, check out this video that tells all; or at least most. ;))
Now, the inquiring minds who want to know about our progress, don’t have to throw their hands up and wonder out loud “When is this site gonna happen?”! They (you) can just come here and find a wealth of information that will include, but not be limited to: progress reports, accomplishments, ideas & random comments from the site’s founder, details of our future plans, grants we are applying for AND most importantly- a space for input. Because this site is dedicated to meeting the needs of every individual living with this annoying disease, we want to hear what you would find most useful in this dynamic tool.
MSSoftServe will be the first site that allows you to determine what information you want to know. No more learning about things that may never affect you and just fuel your fears. ‘Cause let’s face it, one the hardest things about this disease is that we have no idea what tomorrow with bring.
So let’s have some control for once! When MS SoftServe is live, you will not only be able to control the info you are exposed to, you will also have the option to learn the way you want. We all learn best in different ways. For me, I need visuals; words alone immediately slip from my memory. (Which explains why I can’t remember a book I read last year!) But when something is explained visually – I’ll never forget it. Because everyone is different- this site will let you choose what is best for you. There will be options to learn by reading, watching animations or videos (of MS nurses & people living with it) and listening to recordings of people explaining concepts of the disease. You will have the option to take and store notes digitally and record yourself explaining that symptoms that seem to defy words; and all of this can be emailed, downloaded (to your PDA or ipod), collected in your own online store-house of information. And get this: you will be able to create your own URL that explains your version of MS. How cool would that be to send friends and family to a site that helps them understand your specific situation. (and doesn’t freak them out either!) The list goes on… learn how to educate different people in your life (colleagues, kids, parents etc.), choose the language level you want to use (everyday, scientific, or simple straight forward), or select areas for tips on communicating with your doctor, understanding the news… and on, and on.
So that is it in a nutshell. Seeing this project to life is going to be an exciting and satisfying ride. Hop in the back and come along!